Friday, October 31, 2008
Not too much news to report regarding Miss Reese. Her seizures have evened out a bit since dropping her Phenobarb levels three weeks ago, but she is still having too many seizures each day. She is even waking in the middle of the night with seizures. I am giving her an extra week before we change her med levels again. She has been much more alert though, and we got a couple smiles and a laugh out of her earlier this week. I gotta tell you, that is the best. My prayer is that we uncover that happy girl soon.:) My heart feels so heavy and I'm not sure why. Nothing big has changed. I talked to the Ped. yesterday...our Phys Therapist ordered a feeding seat and a new car seat for Reese and I was finalizing the details with the Ped. When we were saying goodbye, she said, "OK, I'll get those chairs ordered for you." I burst into tears. I guess because it was the first step toward ordering "special equipment" for Reese. This is really hard! I opened my Bible this morning to Romans 8. Such a good chapter for those who are suffering, or who are living in this world! But it talks about how the Spirit intercedes for us with groaning, when we don't even know what to pray. That is exactly how I feel--I feel pain but I don't even know what to pray. I know the Spirit is groaning for me right now, and I feel so loved that He cares that deeply about our pain, Reese, and all of His children. What an amazing mystery and a blessing it is to be a child of GOD.
Posted by Kerry D. at 7:05 AM