Hi Friends,
Reese has had a rough month. We have been fighting her seizure
disorder for 4 months and have tried 6 different medications. We do
not yet have control. We have a few more options, most of which have
the possibility of serious side effects. Our Neurologist has talked
about Vigabatrin since the beginning but we chose to begin with the
less threatening medications. Now that we have exhausted the other
options we are considering Vigabatrin. It is not available in the US
(we would have to order it from Canada or Mexico) because it can cause
blindness in some cases and partial vision loss in 1/3 of the cases.
We already know that Reese does not have perfect vision, so this is a
huge consideration for us. If she continues to seize daily, there is
no way for her to develop and progress normally. She is already
significantly delayed and has regressed since the onset of the
seizures in February. So, we are left with a very difficult
decision. Our doc said he wants us to think about it tonight and talk
with him tomorrow (Friday). We are going on a family vacation Sunday-
Saturday, then our doc leaves town for 2 weeks--that throws a little
wrench in our plans too but nothing too big for our God! So we need
prayer--for wisdom in decision-making, peace, confidence, clear
answers, protection over Reese's eyes, healing for her brain. Please
also pray that God would have his hand on her during our vacation. We
are going to a dude ranch in Colorado to celebrate my parents' 40th
anniversary. Please pray that the altitude would not adversely affect
Reese and that we would all find some much-needed rest and FUN!
Lamentations 2:19 "Arise, cry out in the night, as the watches of the
night begin; pour out your heart like water in the presence of the
Lord. Lift up your hands to him for the lives of your children..." Praise the Lord!
Love,
Kerry
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