The last 2 days have been so exciting. Yesterday was Reese's FIRST SEIZURE-FREE DAY!!! So far--at 3:46 PM today--we are seizure-free for the second day in a row!!! PRAISE THE LORD!
We just happened to have our 3-month appointment with our Neurologist and Dietician today. They were thrilled--almost giddy.:) Our Neuro said it must be the Ketogenic Diet that is working! So, he gave me the go-ahead to start weaning the Depakote in one month. He wants to give her a month to enjoy this new seizure freedom and to find her baseline--we are assuming it will continue--and then try to wean the next med. Here is a synopsis of how the Diet can heal:
The following was taken from a script for a news short our family did
in conjunction with Mayo Clinic: "DR. ELAINE WIRRELL (Mayo Clinic)
SAYS WHEN YOU BURN FAT INSTEAD OF CARBOHYDRATES YOUR BODY PRODUCES
CHEMICALS CALLED KETONES. THIS STATE OF KETOSIS CHANGES THE
METABOLISM OF YOUR BRAIN. THE THEORY IS THAT KETOSIS MAY STABILIZE
CELL MEMBRANES, MAKING THEM LESS LIKELY TO SEIZE." It's my
understanding that when ketones stabilize cell membranes long-term,
this can effectively cure epilepsy.
Isn't that amazing??? Reese off of the Phenobarbital is so much better!!! I can't wait to wean the rest.
Please pray for continued FREEDOM!!!!