What just happened?

What just happened? We were having a normal day on Tuesday. Went to the ER on Thursday and thought we were losing Reese on Saturday. We didn't see this coming. At all. On Wednesday Reese began Presenting respiratory symptoms but it really looked like the minor cold that had worked its way around bedroom number 4 at our house the week before. I kept her home from school but handed her off to Mario when I had to attend a meeting at school. I ran into a friend who, with eyes of wild expectation, asked me how I was and how our weekend had been. Racking my brain for what she must be alluding to, I came up with, "It was fine!". She told me she woke up in the middle of the night on Saturday with our family on her mind and could not go back to sleep. So she prayed for us all night, not knowing why. We teared up a little and said goodbye. As soon as she turned to go, another friend announced, "Kerry! I need to talk to you." She told me about how at 1:30am she could not get Reese's face out of her mind. She started to text us but God told her to go pray for Reese instead. This was the wee hours Wednesday morning as Reese was getting sick. As she talked I was reminded of how our brand new neighbor had come over to visit several days before. She asked if everything was ok because God had awakened her to pray for our family. This friendship is so new that she had not met, nor had I told her about Reese. I told my friend about Shannon and Peggy, and both Miriam and I got chills. At the time I had no idea why God was actually waking people in the night to pray for us. Needless to say, I was humbled, amazed, and wondering what was happening. I went home and we all praised the Lord together for his tender care for us and His incredible ways. Little did we know what would transpire three days later. As I held Reese's hand, begging her to breathe and praying for God's mercy over her, He reminded me of these conversations. Remember how I called people to pray before you even knew what was coming? I love her that much. Long story short, her lungs filled with gunk and she could not breathe on her own. We tried everything before the ventilator. The neurologist came in with EEG. He sat us down to tell us this might be a neurological decline or it might just be her giving out. He was suggesting this may be the end. I sat motionless, emotionless, in utter shock. I am not ready for this. No way. The doctor came in and asked us, given the "fact" that her syndrome will never improve, did we want to intubate or allow her to try on her own? I asked, "Are you asking if we want to do everything we can to save her? Then yes." I am sure they have to ask this question but it really bugs me. Wouldn't I do anything and everything to save any of my children? Why would Reese be any different to me, and how do you know whether she will ever improve? You don't. In fact in the last month we have gotten reports that her EEG looks better than ever. So there. Stop asking me that question please. Today she is still in icu on the ventilator but things are much better. She was diagnosed with mycoplasma pneumonia and we expect her to recover. It's not her brain and it's not the progression of aicardi syndrome. It's an infection and she's fighting her little buns off. I guess what I want to say is...I love her so much. With every part of me. I could not love her any more. Just because she has aicardi syndrome does not make her any less valuable to us nor to God. He wakes people up for her!:) We are not ready to say goodbye. Not today, and not ever. We praise and thank the Lord for giving us another day.